eLifeDebrief and pilot plan
Draft for review, Nov 4

Show donors what a free prescription does for a patient's health

A short debrief of our 10:30 meeting, and a small, free, 90 day pilot to measure outcomes at the community pharmacy.

eLife red and black cards

1What we heard

Your goal: measurable patient outcomes you can show donors, not only the value of the medication.

The pharmacy

Dr. Sam runs a free community pharmacy: about 2,700 scripts a month, roughly 500 to 600 patients, medicine shipped at no cost. It is at capacity and needs funding.

What matters
  • Outcomes: A1C, blood pressure, ER visits, no lapse in diabetes medicine.
  • HIPAA, and trust with neighbors.
  • Social workers must not handle health data.
  • Data is self-reported at first, and Dr. Sam's buy-in comes first.

You are also running a small pilot with the American Diabetes Association (a Bank of America grant) that is struggling for referrals. This pilot can draw from the same pharmacy patients.

2What we propose

A free pilot with 50 to 100 pharmacy patients for 90 days, run on eLife check-ins and the eLife app.

Patients report
  • Baseline, then monthly: A1C and blood pressure.
  • ER and urgent care visits.
  • Missed refills.
  • A 3 question patient experience pulse, plus short story prompts in their own words.
How it stays safe
  • Patients consent in the app.
  • Nothing goes into the social workers' case system.
  • The wristband or card is optional, for patients who want emergency access to their summary.

3What Dr. Sam would see

A simple outcomes dashboard, and a one page, donor ready outcomes report showing before and after for the same patients.

Sample, not real data

Outcomes dashboard

Patients enrolled
00
Avg A1C change
0.0sample
ER visits
0sample
Refills on time
00%

Every number here is a placeholder to show the layout.

Sample, not real data

Donor report: before and after

Baseline
XX
Day 90
XX

Same patients, same measure, two points in time. Bar lengths are made up for illustration. The real report would name the measure and the number of patients.

4What we can do later

Phase 2, only with patient consent and compliance sign off:

5Consent and privacy, in plain terms

  • The patient owns the record and decides what is shared. Nothing is shared without their yes.
  • Pharmacy and social work staff do not receive individual health data. Donors see only combined results.
  • Charles described the Emory sickle cell pilot, which went through IRB review. We will bring the same care here.
  • We will walk your compliance contact through exactly how data is collected, stored and shared.

6Timeline and owners

Step 1Weeks 0 to 2

Kickoff with Dr. Sam and compliance.

Owners: Lisa, Dr. Sam, eLife
Step 2Weeks 2 to 4

Consent flow and enrollment script.

Owners: eLife, reviewed by Dr. Sam
Step 3Weeks 4 to 16

Pilot runs: baseline, then monthly check-ins.

Owners: eLife team runs check-ins, pharmacy invites patients
Step 4Week 16

Outcomes report for donors.

Owners: eLife team drafts, Dr. Sam signs off

7What we need from you

  • 30 minutes with Dr. Sam.
  • Three outcome measures you would stand behind with donors.
  • A list of 50 to 100 willing patients.
  • One compliance contact.

8  Honest limits

  • Results are self-reported at first.
  • A small sample can show a pattern but cannot prove the pharmacy caused it.
  • We will not know about ER visits unless the patient confirms them or a verified data link exists.